I am 28 years old having the TAR-Syndrom at both arms and a healthy three-years old daughter.
When I was informed about my maternity the first time , I thought, “this cannot be good”.
My greatest concern was that my child could also be handicapped with the TAR-Syndrom.
My husband ( he is not handicapped) and me walked to various doctor’s checking all and everything and all said, your child will be healthy like those from other women.
In September 1999 our daughter was born. I had a wonderful delivery as I have slept a lot.
The nurse could not believe this asking me and my husband if this is definitely our first delivery.
I am totally proud of my daughter and she gives me more strength than ever.
I remember a doctor in Muenster, but not his name. I was there with my parents and as we said good-bye told me the doctor to move the chair to the table. Normally my mother did those things. But the doctor said, your daughter can do this, if she tries.
Consequently I got the chair moved back to the table, everybody was happy and the doctor told my parents to trust in the strength of me. He said that he cannot change something of the situation I am in; he meant if I was his daughter I had to clean up my room as my elder sister ( I have an elder healthy sister). From that time I had to clean up my room by myself, help in the kitchen and all those things…
As result of this I can say that I think that this handicap is not than hard than other.
I felt a lot of times sad, but with my husband and my daughter I am now a lucky one.
We are sure that our daughter will be the only one, we do not want to have all the trouble with the maternity again.