Katrin

Why a homepage about TAR?

,,TAR, what that?” We have heard it so many times. ,,Ah you are a haemophilic?”  You interview partner is happy that he understand it and that he can file the syndrom . No, we are no haemophilics and we have nothing to do with thalidomid. That’s very important for us! You see not even the layman has problem with this syndrom . Even the Doctors have to think about it when they hear the word TAR.,, Yes…ahm I had it during my studies,” (when was it??) We had the idea with the homepage to clear up missunderstandings and  inform all who concern..

I had the idea long time ago, but I am a technical idiot so I left it. I was always looking for TAR on the internet but I couldn’t find anything. No groups, hospitals, it was like the Syndrom  doesn’t exisit. 

Simons Brother had the idea to public our Syndrom on the net. The medical student Madlen was responsible for the Medical knowledge, Simon and me we start to work. And we got help from our Friends.